Yesterday we had the first visit with Leyla's neurologist, Dr. MacDonald, since she had the MRI and was diagnosed. He did a great job of showing us what it was in the brain scan that they found that diagnosed Leyla with Joubert's Syndrome. He seemed very optimistic about her progress just in the month that it has been since he last saw her. He noticed that her fine motor skills seem to be developing really well, he was very pleased with how she is sitting and making sounds. One thing that Dr. MacDonald told us when we initially saw him is that if a child sits by the age of two, they will eventually walk. This is great news to us because Leyla is getting pretty good at sitting on her own so, that really gives us hope that at some point...only God knows when...she will walk! So, all that said, we left the clinic yesterday feeling very encouraged about Leyla's development and progress! Our next step is to get her into a physical therapy program!
Random Side Note: I was veto'd on posting the 365 days of photos of Leyla so, I'm still going to take the photos...I just won't post everyday! Although, someday this week, I will get the photos from Leyla's 1st birthday party up! What an amazing day for her! We had so many loved ones there to celebrate her with us! She is one very loved little girl that is for sure!
Have a great day!
Jenni
P.S. Happy Birthday Uncle Mason! Love, Leyla Quinn
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