Last week we had two more appointments for Leyla; neither really gave us any more information. Wednesday, she had an abdominal ultrasound that will be sent to the nephrologist for our appointment with him on the 24th of this month. Obviously, the ultrasound tech wasn't able to give us any information as to what she saw or didn't see. An abdominal ultrasound is so much less exciting than an abdominal ultrasound when you're pregnant!! Eric and I both agreed that we had no idea what we were looking at!
Then, on Friday, we had a physical therapy evaluation. The therapist really didn't tell us anything that we didn't already know. She tried to get Leyla to roll over, rotate while on her belly, pull up to sitting from laying....Leyla wanted nothing to do with it, she just clapped everytime she tried to get her to do something new. My fear with physical therapy is that the therapist won't know about Joubert's and she'll expect Leyla to do things that are not realistic for her to be doing at this point. I did ask the therapist whether or not she'd worked with any children with Joubert's in the past...nope. We'll see how it goes...I may need some recommendations for PTs in the area that other Joubert families have used and liked. Right now, we'll be doing PT once a week for 12 weeks and we'll see how that goes and re-evaluate.
On a more fun note...well, for me anyway...Friday, Leyla and I also went for a training walk with our friend Heather and her son/ Leyla's boyfriend Cohen! : ) The kiddos did great! Below is a pic from our pit stop at the park!
Jenni
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