On the other hand, though, I'm excited! The hope is that Leyla's range of sight will increase from the surgery which in turn will (hopefully) help her to want to reach out for things that are off to her sides and eventually roll over! There's also the obvious apperance part of it, we hope that Leyla's eyes will no longer be crossed and that she'll be able to pull her eyes to the outside rather than only being able to look with one eye or turn her head to see things that are off to the side of her.
Other than the surgery, Leyla will have a couple other procedures done next Wednesday, the electroretinogram (ERG), another MRI and she'll have blood taken for the genetic testing. I'm anxious to see the results of the ERG as that should give us some information as to what Leyla's eyes will do in the future. She may be able to see really well right now but, will her retinas still have the same functionality 5 or even 10 years from now?
We're meeting Dr. DeBecker today for Leyla's Pre-Op eye measurements and Dr. Rosenthal (Leyla's Peditrician) tomorrow for her Pre-Op physical then our little lady gets a few days to relax with her Grandma Dawn & Grandpa Jerry, her cousins Brayden & Carley (pictured below), aunties & uncles....AND She'll get to meet the Worlds Largest Buffalo all before heading back for physical therapy on Tuesday and the surgery on Wednesday!
Have a safe holiday weekend!
Jenni
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Hey I am not sure how i stumbled on your blog but I am lovin reading about your family!!I have a daughter with some eye issues also.."oculomotor apraxis"..we have had a lot of test latetly also.Best of luck next week..I will be praying for you and your sweet baby girl!
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